#pontocerrabellarhypoplasia

Back At It

So some of you may have noticed I have taken a small break from writing and posting. I did this to really evaluate how I want to proceed...

Chicken Cordon Bleu Pasta Ok so there is some thing you should all know about me...It's our random fact of the day . I have a really...

Banana Bread Scones w/ brown sugar glaze So I want to try to bring together my love of writing , cooking and advocating for my daughter...

While I sit here with Sophia this morning after getting my turkey ready for is trip to yummy town , Im reflecting over this past year......

So guess who went and became a big girl without permission ?! Thats right: our own little resident polly pocket.... This week marked a...

gasp.... WTF did this chick just say??? I AM IN NO WAY SAYING ALS IS NOT A GREAT CAUSE TO DONATE TO OR SPREAD AWARENESS FOR. BECAUSE IT...

Recently Sophia has learned to do something. This is something I never ever imagined would happen. It was something that I secretly...

Hello Everyone, i have a few confessions to make: First let me apologize for my shotty writing over the past few months. I have had A...

Last fall when we were told by sophias neurologist that she suspected sophia had pontocerrabellar hypoplasia i began to do my own online...

I just want to make something clear today after the past few weeks this need to be reitterated : I opened my story with sophia up to the...