spring updates

HEY YOU!! long time no see 8-)So im so sorry that i am just epically failing at keeping this blog up to date but i assure you we have...

it takes a village

So this incredible thing happened to us last week and I would like to share it.On april 7th a brand new piece of adaptive equipment was...

The time has arrived for Sophia to age out of the birth to three organization..Because she's aging out of the B-3 organization she is...

I really just need to get something out there for everyone, because sometimes i feel like people don't know how to approach me or...

#cask #caskmutation #pch #pontocerrabellarhypoplasia

When we originally saw MRI images of Sophia brain in the summer of 2012 it was like someone had reached in and stolen my lungs, it...

Hello everyone:So I obviously am not keeping up with this all like I had wanted to , but honestly it's hard to go over every messy detail...

Okay guys, I really am so sorry, I wanted to be able to post everyday until I got you guys caught up to present day. but being full time...

Hello everyone im so sorry ive been away for so many days.. I started a new job and im still adjusting to our new schedule...ok so we...

I thought we would take a break from Sophia's story before I round the next corner. in order for me to just get a something out there...